đź§ 
Open Data Commons
  • Open Data Commons
    • Principles of the ODC
  • How to get help
    • General help
    • FAQ
    • Let us know
  • đź“’Tutorials & Documentation
    • Getting started
    • Demo site
    • Getting your data ready
      • Required variables
      • Data format
      • Data dictionary
      • Common errors for Dataset and Data Dictionary
    • Upload to ODC
      • Upload new data
      • Upload a dictionary
      • Upload a Methodology file
      • Supplementary files
      • Common errors during upload
    • Manage a dataset
      • Update a dataset
      • Add metadata
      • Share data
    • Publish your dataset with a DOI
      • Request a DOI
      • Data Quality Checks for DOI
      • Publication in ODC-SCI
        • Summary of review process
      • Publication in ODC-TBI
    • Adding an experimental protocol to a dataset
    • How to cite ODC and dataset
    • Manage a lab
    • Get a reviewer token
    • Estimating costs for data management and sharing
    • Sample DMS
    • ODC Standards
      • Data formatting specifications
      • Common Terminology
        • ODC-SCI CoDEs
      • Metadata standards
        • ODC data dictionary
        • ODC Narrative and Metadata
    • Glossary
  • 🛠️ODC Tool Sandbox
    • Tool Sandbox
      • ODC quality control app
    • For developers
  • đź“—Fundamentals
    • Why share data with ODC?
    • What are the different account types on the ODC?
    • How does privacy work on the ODC?
    • FAIR data
  • âž•Extras
    • The ODC team
      • About ODC-SCI
      • About ODC-TBI
    • Funding and support
      • ODC-SCI funding
      • ODC-TBI funding
    • Publications
    • Our blogs
    • Workshops and Outreach
    • What people are saying
    • Terms of use and policies
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  • WHY share data?
  • WHY the ODCs?
  • Guides: Jump right in
  • Fundamentals: Dive a little deeper

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Open Data Commons

NextPrinciples of the ODC

Last updated 1 year ago

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The Open Data Commons (ODC) is a cloud-based community-governed repository to store, share, and publish research data on Spinal Cord Injury () and Traumatic Brain Injury ().

WHY share data?

There are several challenges to scientific reproducibility and bench-to-bedside translation. For example, only research and published data are disseminated, a phenomenon known as publication bias. Published research reflects only a tiny fraction of all data collected. Data that do not lead to publication are largely ignored, hidden in filing cabinets and hard drives. This results in an abundance of inaccessible scientific data known as “dark data.” When research is disseminated, it is usually in summary reports of aggregated data (e.g., averages across individual subjects) such as scientific articles.

WHY the ODCs?

The SCI community created the ODC-SCI to mitigate dark data in SCI research. This was followed by the creation of the ODC-TBI repository. The ODC aims to increase transparency with individual-level data, enhance collaboration, facilitate analytics, and conform to increasing mandates by funders and publishers to make data accessible. Members of the ODCI have access to a private digital lab space managed by the PI or multi-PIs for dataset storage and sharing. The PIs can share their labs’ datasets with the registered members of the ODC community and make their datasets public and citable. The ODC implements stewardship principles that scientific data be made (Findable, Accessible, Interoperable, and Reusable) and has been widely adopted by the international SCI and TBI research community.

Read more about ODC in our publications

  • Chou A, Torres-EspĂ­n A, Huie JR, et al. Empowering Data Sharing and Analytics through the Open Data Commons for Traumatic Brain Injury Research. Neurotrauma Rep. 2022;3(1):139-157. Published 2022 Apr 5.

  • Torres-EspĂ­n A, Almeida CA, Chou A, et al. Promoting FAIR Data Through Community-driven Agile Design: the Open Data Commons for Spinal Cord Injury (odc-sci.org) [published online ahead of print, 2021 Aug 4]. Neuroinformatics. 2021;10.1007/s12021-021-09533-8.

  • Fouad K, Bixby JL, Callahan A, et al. FAIR SCI Ahead: The Evolution of the Open Data Commons for Pre-Clinical Spinal Cord Injury Research. J Neurotrauma. 2020;37(6):831-838.

  • Callahan A, Anderson KD, Beattie MS, et al. Developing a data sharing community for spinal cord injury research. Exp Neurol. 2017;295:135-143.

  • Nielson JL, Guandique CF, Liu AW, et al. Development of a database for translational spinal cord injury research. J Neurotrauma. 2014;31(21):1789-1799.

  • Ferguson AR, Nielson JL, Cragin MH, Bandrowski AE, Martone ME. Big data from small data: data-sharing in the 'long tail' of neuroscience. Nat Neurosci. 2014;17(11):1442-1447.

Guides: Jump right in

Follow our handy guides to get started on the basics as quickly as possible:

Fundamentals: Dive a little deeper

Learn the fundamentals of ODC and FAIR:

odc-sci.org
odc-tbi.org
FAIR
doi:10.1089/neur.2021.0061
doi:10.1007/s12021-021-09533-8
doi:10.1089/neu.2019.6674
doi:10.1016/j.expneurol.2017.05.012
doi:10.1089/neu.2014.3399
doi:10.1038/nn.3838
Getting started
Why share data with ODC?
FAIR data